Trajectories

The challenge

In maternity care, many different care providers work together around a client. Midwives, gynaecologists, postnatal care organisations and youth health care are all involved in the same pregnancy. But data was long not shared digitally between all those parties. And the pregnant woman herself had no access to her own record. There was no shared standard, no clear governance and no fixed role for end users in decision-making.

Our role

CareCodex carried out VIPP Babyconnect as programme office, commissioned by a steering committee of RSO Nederland, Nictiz and CPZ. We built a national programme that guided nine regional partnerships across the country. End users were involved from the very beginning in the choices that were made.

What it has yielded

Maternity care is now the only sector in the Netherlands where digital data sharing is arranged at the base. Concretely, this means:

• Care providers can retrieve client data from other care providers via a viewer, without leaving their own system.
• Pregnant women have access to their own data via a personal health environment.
• There is a national knowledge base and helpdesk for ongoing support.
• Eleven organisations have signed an agreement for long-term collaboration.
• Sustainability is secured with Blinkz, which permanently supports the Duurzaam Informatiestelsel Geboortezorg.

"With the time savings this gives me, I can spend much more time on what matters to me: care for the client."
- - Midwife Karin van 't Hout

View the Babyconnect roadmap here

The challenge

In palliative care, many different care providers work simultaneously around a patient. Proactive care planning - recording treatment wishes and limits in the final phase of life - requires good information exchange. But there are no clear agreements about who records what, who may consult it and how to structurally secure that.

Our role

We guide two components. First, the completion of pilots around the exchange of proactive care planning. The outcomes are fed into the nationally initiated PZP coalition. Second, the exploration and design of governance: who takes what role, how do you create support among all parties involved, and how do you maintain the structure when the project is finished.

Where we are heading

A workable and supported governance for palliative care. One that ensures proactive care planning is exchanged in a way that matches the practice of professionals and patients.

The challenge

Children in the palliative phase are in an exceptionally complex network of care and support. Around child and family, dozens of parties are simultaneously involved: from paediatricians, paediatric neurologists and nurses to pedagogical staff, psychologists, informal carers and youth consultants, and from care insurers and municipalities to schools and rehabilitation centres. All those parties create and consult information, but a shared standard that does justice to that complexity does not yet exist. That is not just a technical question. It is also a governance issue: how do you organise say and alignment in a network that is so large and diverse?

Our role

Building on our experiences in Babyconnect, we guide both the functional and technical proof of concepts and the governance design. We deliberately go through the same steps that have previously proven their value: first understand what end users need, then determine how technology can support that.

Where we are heading

A supported information standard and governance for children's palliative care, with the needs of children, parents and professionals as the starting point.

The challenge

The Ministry of Health, Welfare and Sport is developing generic functions: digital building blocks that can be used broadly in healthcare. The question is whether these building blocks actually connect to the daily practice of the people who have to work with them.

Our role

We are involved from the perspective of the end user. Using the Mission Copernicus guide, we accompany proof of concepts and present the outcomes to end users. In this way, we gather targeted insights into how usable the solutions are, how they relate to each other and what they add in practice.

Where we are heading

Generic functions that are not only technically correct, but also truly make a difference for the professionals and citizens who work with them every day.